[...]... consultant and endoscopist I have come to appreciate the enormous impact that diagnosis and treatment can have on individuals with coeliac disease and the value of good support This book is written to help nurses, through knowledge and understanding, and add value to the lives of those in their care with coeliac disease Introduction and How to Use This Book ‘I read and I forget I see and I remember I do and. .. conditions and that its cause has remained elusive has meant that its recognition as a distinct disorder, readily diagnosed and treated, has been a long and complicated journey This is why history is so important, not only from the point of view of general interest but in helping both the healthcare profession and patients understand the complexity of the disease Coeliac Disease: Nursing Care and Management. .. expertise, will at some point play a role in the care and Coeliac Disease: Nursing Care and Management Helen Griffiths © 2008 John Wiley & Sons, Ltd ISBN: 978-0-470-51260-9 16 Coeliac Disease management of these patients Although complex, in order to understand how it is that an immunological reaction can develop as a result of dietary exposure, an understanding of the pathway leading to the production... skim read and then still find ourselves a few weeks later saying ‘I’m sure I read something about that’ Sound familiar? The aim of this book is threefold: r To increase nurses’ knowledge and understanding of the care and management of coeliac disease r To enable general nurses to understand the health needs of coeliac patients in their care r To assist specialist nurses in developing services for coeliac. .. individuals with coeliac disease will become clearer when looking at disease presentation PATHOGENESIS OF COELIAC DISEASE So, what are the key steps underlying the intestinal inflammatory response seen in coeliac disease? As already acknowledged, coeliac disease is a complex immune-mediated syndrome with strong interactions between environmental and genetic factors 22 Coeliac Disease Table 2.1 The nutritional... In 1951, Dr Haas together with his son (Haas & Haas, 1951) published The Management of Coeliac Disease, the most comprehensive medical text yet written on coeliac disease and the first in which a specific carbohydrate diet was offered as an effective and lasting treatment, and moreover, one widely accepted as a cure for coeliac disease Protein versus carbohydrates Whilst the Drs Haas were writing their... access to care at a time that is appropriate and timely and acknowledges coeliac disease as a long-term condition That it is built around pathways and protocols that support the evidence base and audit its effectiveness That links are maintained with all those involved in the service That the personal and professional development and learning required in undertaking the role is acknowledged and built... thought that coeliac disease affects as many as 1:100 people in the United Kingdom, many of whom will remain undiagnosed The aim of this book is to provide nurses with the knowledge and understanding to not only help identify those possibly affected but understand the investigative pathway, the impact of the diagnosis and the long-term treatment and management The treatment of coeliac disease is the... insulin from the pancreas, and skin regeneration Vitamin B =⇒ As a group the B vitamins maintain healthy skin and muscle tone, enhance the function of the immune and nervous system and promote cell growth and division Vitamin K =⇒ Necessary for the formation of prothrombin, required for blood clotting The Characteristics of Coeliac Disease Common: Coeliac disease Crohn’s disease Chronic pancreatitis... Harms, K., Rey, J., Shmerling, D.H & WalkerSmith, J.A (1979) Re-evaluation of diagnostic criteria The History of Coeliac Disease 13 for coeliac disease Archives of Disease in Childhood 54:783– 786 Meuwisse, G.W (1970) Diagnostic criteria in coeliac disease Acta Paediatrica Scandinavica 59:461 Newland, J (1921) Prolonged intolerance to carbohydrates Transactions of American Paediatric Society 44:11 Paulley, . helping both the healthcare profession and patients understand the complexity of the disease. 1 Coeliac Disease: Nursing Care and Management Helen Griffiths . nurses’ knowledge and understanding of the care and management of coeliac disease. r To enable general nurses to understand the health needs of coeliac patients