The Ethics and Governance of Human Genetic Databases European Perspectives Part 6 ppsx
The Ethics and Governance of Human Genetic Databases European Perspectives Part 6 ppsx
... there aredifferent understandings of ethics and the appropriate role and resourcing of research, and indeed of the concept of global public goods itself.Our argument proceeds by outlining the ... manner.20 The UNESCO Universal Declaration on the Human Genome and Human Rights has recognized the fundamentalunity of humankind manifested in our sharing of the genome and sug-gested the linkage of ... opens the way for the consider-ation of the interests of other family members in the data on their relative,which raises the question whether consent will be required from the family or other...
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The Ethics and Governance of Human Genetic Databases European Perspectives Part 1 ppsx
... original hypothesis was that there must be a clear distinction between the American and European approaches to the ethics of human genetic 1 The expressions human genetic databanking’ and genetic ... of data for research at the time of collection. This creates a particular challenge for the ethics of databaseresearch.Introduction: some lessons of ELSAGEN 5 The Ethics and Governance of Human ... CambridgeQuarterly of Healthcare Ethics 13 (2004), pp. 254– 262 . 16 Matti Ha¨yry and Tuija Takala2 On human genetic databases Gardar A´rnason Human genetic databases have the primary purpose of providing...
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The Ethics and Governance of Human Genetic Databases European Perspectives Part 2 pptx
... History and Philosophy of Biological and Biomedical Sciences32 (2001), pp. 68 9–704.20 Matti Ha¨yry and Tuija Takala the basic human rights, and from there into the constitutions of many European ... such as the donation of genetic information to population-based genetic databases straddle the boundarybetween individual legal and ethical concerns and the wider concerns of society, and it ... be the only possible way of protecting the interest of privacy in the technology age of cyberspace and genetic databases. 97Allen, ‘Privacy in American Law’.8Council Directive 95/ 46/ EC of...
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The Ethics and Governance of Human Genetic Databases European Perspectives Part 3 pptx
... under-standing of people’s perceptions of privacy and their trust in the guard-ians of biobanks and the institutions setting them up and regulating them. The UK team felt that the findings of this ... picture of the nation. The response ratewas 68 %. Males accounted for 49.9% of respondents and females 50.1%: the distribution of the sample is very representative of the Icelandic nation. The empirical ... Anderson, ‘InSearch of the Holy Grail: Media Discourse and the New Human Genetics’, NewGenetics and Society 21 (2002), pp. 327–337; Alan Petersen, ‘Biofantasies: Genetics and Medicine in the...
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The Ethics and Governance of Human Genetic Databases European Perspectives Part 4 docx
... evaluate and monitor theircurrent usage.5Definitions of genetic databases can be found in the laws of Iceland,Sweden and Estonia, 6 but these are limited in their scope and may notcapture genetic ... Defining human genetic databases One of the major obstacles to developing a uniform system of regulation is the lack of an agreed definition of genetic database’ based on an under-standing of the ... 20c and d. 6 In the UK there has been little attempt to develop a legal definition of genetic databases, although there is general legislation in the form of the Human Tissue Act 2004 to cover the use...
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The Ethics and Governance of Human Genetic Databases European Perspectives Part 5 potx
... grey zone. The question is whether or not the interest that the employer wants to protectis proportionate to the violation of the integrity of the employee. On the other hand, neither in the UK ... descriptions of DNA.30Explanatory Report to the Convention for the Protection of Human Rights and Dignity of the Human Being with Regard to the Application of Biology and Medicine:Convention on Human ... considerations in the discussion about feedback are the rightnot to know, the duty of confidentiality and the duty of care.1 The centralquestion is whether the operator of a genetic database...
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The Ethics and Governance of Human Genetic Databases European Perspectives Part 7 pps
... private,whether it is the best use of money), governance of the project, aims of the project, scientific value of the project (reliability of the data) and the perception of the public.194 Margit Sutropnot ... possibilities of betrayal. The lack of critical analysis of possible risks and benefits may bring a seriousbacklash in the future. The promoters’ limitless hype of the benefits of genetic databases ... anyoneat the time of consent: the time of the storage of samples and data has notbeen limited; it is not possible to foresee all the uses of the samples and associated data nor to specify who the...
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The Ethics and Governance of Human Genetic Databases European Perspectives Part 8 ppt
... not only the Human Genome Project, but also population-based human genetic databases. One of the main justifications for human genetic databases isindeed the possibility of producing the knowledge ... at a theoretical level – and whether the latter iseven possible.4. the ways in which the development of and operation of biobanks giverise to questions about the existing repertoire of ethical ... demonstrate, as a matter of fact, the setting up of ethical mechanisms to respond to biobank developments.However, the nature and efficacy of this oversight, and the form and intensity of the accompanying...
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The Ethics and Governance of Human Genetic Databases European Perspectives Part 9 potx
... respect the views of the many rather than the views of the few. The point of social studies is, within this model, to inform the authorities of the direction of the majority opinion. The second ... large-scale human genetic databases? And secondly, in the light of the research of the legal team,3how well have the authorities of Estonia, Iceland, Sweden and the United Kingdom addressed theseconcerns? ... the theory of geneschanged. The genes of molecular genetics are as far removed from the genes of classical genetics as the atoms of modern physics are from the atoms of Leucippus and Democritus....
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The Ethics and Governance of Human Genetic Databases European Perspectives Part 10 pdf
... 45public attitudes in 45, 66 67 , 71–72, 1 16, 250, 251ELSAGEN study 67 , 68 69 general attitudes towards genetic research 67 68 privacy 69 –70, 71trust 67 , 69 , 70–71, 195, 1 96, 252public good approach ... 59 60 ,255–2 56 regulation (governance) 250alternative concerns 254–255majority concerns 252–253Sweden 46, 59, 60 65 , 250, 251methods of study 59 60 United Kingdom 45, 66 67 , 1 16, 250, 251ELSAGEN study 67 , 68 69 privacy ... 202–203consent and 2 06 207disclosure 203–204understanding and 204–205voluntariness and 205–2 06 human genetic databases 211–2 16 authorization as consent to conditions of use of data214–2 16 Estonian...
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Từ khóa: we describe the cloning and expression of deoxyhypusine hydroxylase dohhdraganddrop tech chapter 1 adventuring into the mac world chapter 2 the nuts and bolts of your mac chapter 3 getting to the core of the applethe structure and functions of the red cell membrane macromolecules that carry themthe life and times of an objectdevelopment of a regional risk management framework for apec economies for use in the control and prevention of introduced marine pestsBáo cáo thực tập tại nhà thuốc tại Thành phố Hồ Chí Minh năm 2018Nghiên cứu tổ chức pha chế, đánh giá chất lượng thuốc tiêm truyền trong điều kiện dã ngoạiđề thi thử THPTQG 2019 toán THPT chuyên thái bình lần 2 có lời giảiBiện pháp quản lý hoạt động dạy hát xoan trong trường trung học cơ sở huyện lâm thao, phú thọGiáo án Sinh học 11 bài 13: Thực hành phát hiện diệp lục và carôtenôitGiáo án Sinh học 11 bài 13: Thực hành phát hiện diệp lục và carôtenôitQuản lý hoạt động học tập của học sinh theo hướng phát triển kỹ năng học tập hợp tác tại các trường phổ thông dân tộc bán trú huyện ba chẽ, tỉnh quảng ninhNghiên cứu, xây dựng phần mềm smartscan và ứng dụng trong bảo vệ mạng máy tính chuyên dùngĐịnh tội danh từ thực tiễn huyện Cần Giuộc, tỉnh Long An (Luận văn thạc sĩ)Chuong 2 nhận dạng rui roTổ chức và hoạt động của Phòng Tư pháp từ thực tiễn tỉnh Phú Thọ (Luận văn thạc sĩ)Kiểm sát việc giải quyết tố giác, tin báo về tội phạm và kiến nghị khởi tố theo pháp luật tố tụng hình sự Việt Nam từ thực tiễn tỉnh Bình Định (Luận văn thạc sĩ)Quản lý nợ xấu tại Agribank chi nhánh huyện Phù Yên, tỉnh Sơn La (Luận văn thạc sĩ)BT Tieng anh 6 UNIT 2Giáo án Sinh học 11 bài 15: Tiêu hóa ở động vậtchuong 1 tong quan quan tri rui roNguyên tắc phân hóa trách nhiệm hình sự đối với người dưới 18 tuổi phạm tội trong pháp luật hình sự Việt Nam (Luận văn thạc sĩ)Giáo án Sinh học 11 bài 14: Thực hành phát hiện hô hấp ở thực vậtChiến lược marketing tại ngân hàng Agribank chi nhánh Sài Gòn từ 2013-2015HIỆU QUẢ CỦA MÔ HÌNH XỬ LÝ BÙN HOẠT TÍNH BẰNG KIỀM