california children apos s services css approved sickle cell disease centers

Tài liệu Parental Attitude to Children with Sickle Cell Disease in Selected Health Facilities in Irepodun Local Government, Kwara State, Nigeria doc

... that sickle cell trait increases the incidence of these problems Lesi (1982) identified some types of sickle cell crises as hemolytic crisis, aplastic crisis and vasoocclusive crisis and factors ... participants as par prevention of sickle cell disease and attitude towards their children with sickle cell disease Table 4: Participants’ knowledge about causes of sickle cell disease and attitudes towards ... attitudes towards their children with sickle cell disease but where these parents have sound and scientific knowledge of causes, impacts and prevention of sickle cell disease, it is sure that this scientific...

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Tài liệu Understanding Growth Failure in Children With Homozygous Sickle-Cell Disease doc

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... K., Stallings, V A., & Zemel, B S (2004) Low vitamin D status in children with sickle cell disease Journal of Pediatrics, 145, 622-627 Center for Disease Control (2010) Sickle Cell Disease: Data ... A status, hospitalizations, and other outcomes in young children with sickle cell disease Journal of Pediatrics, 145, 99-106 Silva, C M., & Viana, M B (2002) Growth deficits in children with sickle ... nutritional status, and disease severity on longitudinal patterns of growth failure in children with sickle cell disease Pediatric Research, 61(5, Pt 1), 607-613 Bio Erin L Bennett, RN, MSN, is a registered...

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Tài liệu Growth and nutritional status of children with homozygous sickle cell disease ppt

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... definition of SCD: homozygous sickle cell (SS) disease, sickle haemoglobin C (SC) disease, sickle cell bz thalassaemia (S bz thalassaemia) and sickle cell b0 thalassaemia (S b0 thalassaemia).7 The ... sickle cell anaemia’ is used synonymously only for homozygous SS disease, and the majority of studies reviewed relate to this genotype Results Nutritional status and disease severity Methods A literature ... became apparent after years of age Children with Hb SS and S b0 thalassaemia were consistently smaller and less sexually mature than those with SC disease and S bz thalassaemia Sexual maturation followed...

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Management of Sickle Cell Disease in Children doc

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... pneumonia (acute chest crisis) Possible Concurrent Conditions • CNS event (stroke) • priaprism • aplastic crisis • fever/sepsis • acute chest syndrome • acute sequestration crisis Assessment and Treatment: ... initiation assessment Baseline Assessment: HR, BP, RR, O2 Sat, sedation score and pain score Administration Assessment: (usual infusion rate per dose, 15-20 minutes) HR, BP, RR O2 Sat and sedation score ... Painful Episode (Vaso Occlusive Disease) A vaso-occlusive crisis (VOC) is the most frequent complication of Sickle Cell Disease It is a condition whereby obstruction of blood flow by sickled erythrocytes...

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báo cáo hóa học: " A psychometric evaluation of the PedsQL™ Family Impact Module in parents of children with sickle cell disease" pptx

Danh mục: Hóa học - Dầu khí

... children with sickle cell disease, we collected data on the disease status of the children with sickle cell disease Disease status was classified a priori as mild or severe disease regardless ... worry scales than children with mild sickle cell disease and children without sickle cell disease In our subset analysis (Figure 1) we analyzed the following groups for differences in scores: 1) sickle ... without sickle cell disease In addition, we also compared parents of children with sickle cell disease to parents of children without sickle cell disease and without other co-morbidities to ensure...

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báo cáo hóa học:" Double disadvantage: a case control study on health-related quality of life in children with sickle cell disease" potx

Danh mục: Hóa học - Dầu khí

... low socio-economic status (SES) on HRQoL Subsequent studies that did specifically address the role of low SES yielded conflicting results, which can be ascribed to isolated concepts of SES that ... the questionnaire required 20 minutes Statistical analysis The Statistical Package for the Social Sciences (SPSS version 16.0) was used to manage and analyze the data First, missing values were ... current study design did not allow us to investigate if there is an interaction effect of SES and sickle cell disease on HRQoL Further limitations concerned the instrument we used to assess HRQoL...

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Báo cáo y học: "Asthma is a risk factor for acute chest syndrome and cerebral vascular accidents in children with sickle cell disease" ppt

Danh mục: Báo cáo khoa học

... sickle cell disease had increased hospital admissions for pain crises and acute chest episodes compared with patients with only sickle cell disease [9] Our results are unique because we assessed ... (Table 2) Admissions for vaso-occlusive pain crisis and exchange transfusions were not statistically significant between groups Patients with reactive airway disease and sickle cell disease have a ... there is paucity of research investigating patients with concomitant asthma and sickle cell disease Table 2: Results in children with sickle cell disease with and without asthma Patients with Sickle...

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Tài liệu THE MANAGEMENT OF SICKLE CELL DISEASE ppt

Danh mục: Cao đẳng - Đại học

... 2000;(4 Suppl) :S1 -46], is used throughout this book: Genotype Full Name Abbreviation s s Sickle cell disease- SS SCD-SS s / βc Sickle cell disease- SC SCD-SC s / / βo thalassemia s / β+ thalassemia ... thalassemia SCD -S βo thal Sickle cell disease -S β+ thalassemia SCD -S β+ thal Sickle cell disease -S βo DIAGNOSIS AND COUNSELING W ORLD W IDE W EB R ESOURCES SICKLE CELL AND GENETIC WEB SITES Sickle ... in children and adolescents with sickle cell disease Pediatrics 1989;84:500-8 Sickle Cell Disease Guideline Panel Sickle Cell Disease: Screening, Diagnosis, Management, Counseling in Newborns...

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Hydroxyurea for the Treatment of Sickle Cell Disease docx

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... 43 Results from Randomized Trials in Sickle Cell Disease 46 Results from Observational Studies in Sickle Cell Disease Including Case Reports 47 Results from Studies in Other Diseases ... patient-years) Stroke is another serious consequence of sickle cell disease and is seen more often in children than adults In the CSSCD, the prevalence of stroke was percent in those with Hb SS disease, ... of its use in patients with sickle cell disease and other diseases, and to discuss barriers to the use of hydroxyurea and other medications in the treatment of sickle cell disease The results of...

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Psychological complications in sickle cell disease pptx

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... assessments These assessments should be initiated at years of age, when a child starts school Neuropsychological rehabilitation should be considered following any assessments, and patients should ... patients with sickle cell disease: Conceptual and methodological consideration In Psychosocial Aspects of Sickle Cell Disease: Past, Present, Future Directions of Research (ed by K.B Nash ), Haworth ... short form 36 (SF-36) health survey in adults with sickle cell disease and comparison groups – low scores indicate poor quality of life Signiﬁcant differences were found between sickle cell disease...

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báo cáo hóa học: " Utility of WHOQOL-BREF in measuring quality of life in Sickle Cell Disease" docx

Danh mục: Hóa học - Dầu khí

... females The mean age was 31.3 years ± 9.6 years with a range from 18–70 years The commonest genotypes were 68% SS (Homozygous S Disease) disease and 21.5% SC (Heterozygous S- C Disease) Most were 'single' ... Sickle cell disease pain: relation of coping strategies to adjustment J Consult Clin Psychol 1989, 57(6):725-731 Hasan SP, Hashmi S, Alhassen M, Lawson W, Castro O: Depression in sickle cell disease ... not have stronger correlations with the SF-36 and QOLS suggests that while it does share some overlap with these existing measures, it assesses a unique aspect of quality of life not assessed by...

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báo cáo hóa học: " Quality of life among adolescents with sickle cell disease: mediation of pain by internalizing symptoms and parenting stress" pdf

Danh mục: Hóa học - Dầu khí

... well-established and assesses sociodemographic and psychological risk based on social and familial risk factors The scored measure, for this study, yielded a risk index based on presence of six specific ... adolescents with sickle cell disease Curr Psychiatry Rep 2007, 9(2):114-121 Barakat LP, Patterson CA, Tarazi RA, Ely E: Disease- related parenting stress in two sickle cell disease caregiver samples: ... the items reflect disease management activities that may be sensitive to episodes of pain in contrast to severity of pain Thus, as these results suggest, caregiver ability to manage disease complications...

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báo cáo hóa học:" Spectrum of musculo-skeletal disorders in sickle cell disease in Lagos, Nigeria" doc

Danh mục: Hóa học - Dầu khí

... relationship between infectious presentations such as osteomyelitis and septic arthritis with less than 10 year olds, as well as between non-infectious presentations such as AVN and skin ulcers with ... presenting in the late stage Multiple presentations are seen in all groups and this calls for a detailed assessment of SCA patients by health care professionals in order to avoid cases of missed ... Authors’ information RAB: MBBS, FMCS Lecturer/Consultant SOG: MBBS, FMCS, FWACS, FICS Senior lecturer/Consultant DCO: MBBS, FMCS, FWACS, FICS Senior lecturer/Consultant TOA: MBBS, FRCS, FWACS Lecurer/Consultant...

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báo cáo hóa học:" Utility of WHOQOL-BREF in measuring quality of life in Sickle Cell Disease" doc

Danh mục: Hóa học - Dầu khí

... females The mean age was 31.3 years ± 9.6 years with a range from 18–70 years The commonest genotypes were 68% SS (Homozygous S Disease) disease and 21.5% SC (Heterozygous S- C Disease) Most were 'single' ... Sickle cell disease pain: relation of coping strategies to adjustment J Consult Clin Psychol 1989, 57(6):725-731 Hasan SP, Hashmi S, Alhassen M, Lawson W, Castro O: Depression in sickle cell disease ... not have stronger correlations with the SF-36 and QOLS suggests that while it does share some overlap with these existing measures, it assesses a unique aspect of quality of life not assessed by...

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Báo cáo y học: "Treatment of stasis dermatitis using aminaphtone: Collapsing glomerulopathy in sickle cell disease: a case report" pps

Danh mục: Báo cáo khoa học

... change disease; PSGN: poststreptococcal glomerulonephritis; RF: rheumatoid factor; SCA: sickle cell anemia; SCD: sickle cell disease; SCN: sickle cell nephropathy; VDRL: Venereal Disease Research ... patients with SCD-SS of SCN FSGS is a disease with diverse histological patterns and etiologic associations, occurring in two types: primary or idiopathic and secondary forms Variants of primary FSGS ... eventually progressed into end-stage renal disease (ESRD), requiring hemodialysis We followed the patient for one year, but she was lost to follow-up Discussion Sickle cell nephropathy (SCN) is an important...

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Báo cáo y học: " The use of partial exchange blood transfusion and anaesthesia in the management of sickle cell disease in a perioperative setting: two case reports" pot

Danh mục: Báo cáo khoa học

... of this disease in other countries as well SCD causes progressive damage to multiple organs Although the concept of classical SCD triggers is less important today, the effect of the disease on ... factors modulate the onset and course of the disease and influence its pathophysiology Nevertheless, there is a consensus that imbalances in homoeostasis can cause critical exacerbation of SCD ... blood transfusion compared with simple transfusion for first overt stroke is associated with a lower risk of subsequent stroke: a retrospective cohort study of 137 children with sickle cell anemia...

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Báo cáo y học: " Depression and loneliness in Jamaicans with sickle cell disease" potx

Danh mục: Báo cáo khoa học

... homozygous sickle cell (SS) disease, 178 with sickle cell- haemoglobin C (SC) disease, 33 with sickle cellbeta + thalassaemia (S beta+ thal) and 14 with sickle cellbeta0 thalassaemias (S beta0 ... Hasan SP, Hashmi S, Alhassen M, Lawson W, Castro O: Depression in sickle cell disease J Natl Med Assoc 2003, 95:533-537 Molock SD, Belgrave FZ: Depression and anxiety in patients with sickle cell ... depression (22%) in this study sample This is despite the fact that those with SC disease were more likely to be employed, and had less severe disease as evidenced by less frequent visits to...

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Báo cáo y học: " Role of free radicals in the pathogenesis of acute chest syndrome in sickle cell disease" pot

Danh mục: Báo cáo khoa học

... patients with homozygous sickle cell disease Eur J Clin Nutr 1989, 43:609-614 63 Houston PE, Rana S, Sekhsaria S, Perlin E, Kim KS, Castro OL: Homocysteine in sickle cell disease: relationship to stroke ... increased risk for cerebrovascular disease in SCD patients [63], suggesting an increased propensity toward vascular disease Additionally, serum levels of key cofactors in homocysteine metabolism ... antioxidant defense mechanisms in SCD, how this relates to the pathophysiology of ACS has not been elucidated One mechanism responsible for vasoocclusion is the adhesion of sickle RBCs to the vascular...

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Báo cáo y học: "Case Report: Psychosis in an adolescent with sickle cell disease" pps

Danh mục: Báo cáo khoa học

... Caribbean [1] It is a hereditary and chronic medical condition that encompasses sickle cell anemia (SCA) (Hb SS), sickle cell hemoglobin C disease (Hb SC) and sickle cell B thalassaemia (SB Thal.) and ... Organic psychosis complicating brain tissue silent-infarcts Brain tissue silent infarcts are not uncommon among SCD patients [10] Statius van Eps et al [11] reported transient psychosis in association ... be discussed in light of the three possible dimensions: Two completely independent disease conditions coexisting It is possible that the psychotic symptoms and SCD in this patient co-existed completely...

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Tài liệu A PARENTS’ HANDBOOK FOR Sickle Cell Center docx

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... best judgements Your teen should know the name of his condition (i.e., sickle cell anemia or SS disease, sickle C disease or SC disease, sickle beta thalassemia disease or S beta thal disease, ... GUIDELINES FOR PARENTS Key Guidelines for Parents See Appendices A and B for answers to the questions “What is Sickle Cell Disease? ” and “What Causes Sickle Cell Disease? ” Prevent Problems Build Self-Esteem ... Adult Support Groups K Sample Pain Management Agreement L California Children s Services (CCS): Approved Sickle Cell Disease Centers M Chances of Having a Baby with Sickle Cell Disease N Diagrams...

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