[...]... definition of chronic illness is offered: Chronic illness is the irreversible presence, accumulation, or latency of disease states or impairments that involve the total human environment for supportive care and self-care, maintenance of function, and prevention of further disability” (Curtin & Lubkin, 1995, pp 6–7) IMPACT OF CHRONIC ILLNESS This section addresses the influence of chronic illnesses and impact. .. in Chronic 17 Ann Marie Hart Illness Care Introduction 457 457 APRN Core Competencies in Chronic Illness Care Contributions of APRNs in Chronic Illness Care 472 Improving APRN-Delivered Chronic Illness Care Summary and Conclusions References 480 Introduction Issues 485 493 495 Interventions Outcomes 503 505 Acknowledgment References Part IV 505 506 Impact of the System Models of Care 19 Pamala D Larsen. .. (Centers for Medicare and Medicaid, 2008) Van Den Bos and colleagues (2011) estimate that the annual Impact of Chronic Illness Table 1-1 Topics of Healthy People 2020 Access to health services HIV Adolescent health* Immunization and infectious diseases Arthritis, osteoporosis, and chronic back conditions Injury and violence prevention Blood disorders and blood safety* Lesbian, gay, bisexual, and transgender... quality of life Defining Chronicity —Jenny, wife of a 63-year-old cancer patient These patient stories chronicle part of the illness experience The illness experience is nursing’s domain Thus, the focus of this book is on the illness experience of individuals and families, and not specific disease processes While nursing cannot cure chronic disease, nursing can make a difference in the illness experience... definitions of chronic disease are important, from a nursing perspective we are far more interested in how the illness is affecting the client and family What is the illness experience of the client and family? Price (1996) suggests that the onus of defining chronic illness, and similarly, quality of life and comfort, should be that of the client’s, as only the client truly understands the illness However,... identify ourselves as citizens of that other place” (p 3) My husband and I are now in “that other place”—the land of chronic illness One would think that being a registered nurse for 42 years and caring for those with chronic illness in many settings would have made me an expert in this land This is my area; I teach about it, know about it, and edit this textbook This is “me.” However, I didn’t realize... such as an alteration in structure and function Illness, on the other hand, is the human experience of symptoms and suffering, and refers to how the disease is perceived, lived with, and responded to by individuals, their families, and their healthcare providers Although it is important to recognize the pathophysiological process of a chronic disease, understanding the illness experience is essential... is to consider chronic illness as a culture Although we often believe that each disease is different, there are multiple tasks that are similar, and illness experiences may look alike across diseases Strauss (1975) was among the first researchers to recognize the similar issues and tasks within the culture of chronic illness Generally, the culture of chronic illness includes preventing and managing medical... decrease the impact of chronic disease Professional Education One of the challenges in chronic disease care and management is educating healthcare professionals about providing care tailored to those with chronic 13 14 CHAPTER 1 / Chronicity disease The differences are vast between caring for a person with an acute illness on a short-term basis, and caring for those over the long haul with a chronic condition... older adults as a criterion for licensure and certification More stringent training standards would be implemented for direct-care providers by increasing existing federal training requirements and establishing state-based standards And finally, because informal caregivers continue to play important roles in the care of older adults (with and without chronic illness) , training opportunities should also . this product, use ISBN: 97 8-1 -4 49 6-4 90 5-0 Library of Congress Cataloging-in-Publication Data Chronic illness : impact and intervention / [edited by] Ilene M. Lubkin and Pamala D. Larsen. 8th ed. . p. ; cm. Includes bibliographical references and index. ISBN-13: 97 8-0 -7 63 7-9 96 6-3 ISBN-10: 0-7 63 7-9 96 6-1 I. Lubkin, Ilene Morof, 192 8-2 005. II. Larsen, Pamala D., 194 7- [DNLM: 1. Chronic.