The Ethics and Governance of Human Genetic Databases European Perspectives Part 5 potx
The Ethics and Governance of Human Genetic Databases European Perspectives Part 5 potx
... descriptions of DNA.30Explanatory Report to the Convention for the Protection of Human Rights and Dignity of the Human Being with Regard to the Application of Biology and Medicine:Convention on Human ... (e.g.SOU2004:20 Genetics, Integrity and Ethics, pp. 343– 352 ).Third parties’ interests in population genetic databases 117 15 Governance of population genetic databases: a comparative analysis of legal ... February 2001).20 Human Genetics Commission, Inside Information: Balancing Interests in the Use of Personal Genetic Data (May 2002), paras. 9 .53 and 9 .54 .21Ibid., paras. 5. 50 and 9 .55 .114 Lotta...
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The Ethics and Governance of Human Genetic Databases European Perspectives Part 9 potx
... respect the views of the many rather than the views of the few. The point of social studies is, within this model, to inform the authorities of the direction of the majority opinion. The second ... large-scale human genetic databases? And secondly, in the light of the research of the legal team,3how well have the authorities of Estonia, Iceland, Sweden and the United Kingdom addressed theseconcerns? ... 93–1 45. Genetic databases and governance 241agreements represent cases of privatization of a specific function of anotherwise public gene bank, i.e. a classical tool of governance. The lack of direct...
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The Ethics and Governance of Human Genetic Databases European Perspectives Part 1 ppsx
... of data for research at the time of collection. This creates a particular challenge for the ethics of databaseresearch.Introduction: some lessons of ELSAGEN 5 The Ethics and Governance of Human ... original hypothesis was that there must be a clear distinction between the American and European approaches to the ethics of human genetic 1 The expressions human genetic databanking’ and genetic ... philosophical context of the science and technol-ogy on which the human genetic databases are based. The upshot of the analysis of fundamental concepts in bioethics isthat the widely accepted...
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The Ethics and Governance of Human Genetic Databases European Perspectives Part 2 pptx
... followed the US tradition,have implemented the Directive of the European Parliament and the Council of Europe on the protection of individuals with regard to the processing of personal data and on the ... an Information Age: The Problem of Privacy inPublic’, Law and Philosophy 17 (1998), pp. 55 9 59 6.6This happened in 19 95. The languages of privacy 39Subsidiarity The idea of attaining essential ... such as the donation of genetic information to population-based genetic databases straddle the boundarybetween individual legal and ethical concerns and the wider concerns of society, and it...
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The Ethics and Governance of Human Genetic Databases European Perspectives Part 3 pptx
... under-standing of people’s perceptions of privacy and their trust in the guard-ians of biobanks and the institutions setting them up and regulating them. The UK team felt that the findings of this ... picture of the nation. The response ratewas 68%. Males accounted for 49.9% of respondents and females 50 .1%: the distribution of the sample is very representative of the Icelandic nation. The empirical ... with the HSD and the form of the Act. A large number of articles, by Icelandic specialistsas well as by people from other countries, have been written about the HSD and the passing of the HSD...
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The Ethics and Governance of Human Genetic Databases European Perspectives Part 4 docx
... evaluate and monitor theircurrent usage. 5 Definitions of genetic databases can be found in the laws of Iceland,Sweden and Estonia,6but these are limited in their scope and may notcapture genetic ... Defining human genetic databases One of the major obstacles to developing a uniform system of regulation is the lack of an agreed definition of genetic database’ based on an under-standing of the ... Gibbons and Dr Andrew Smart for their assistance in developingsome of the ideas in this chapter and the ELSAGEN law team for increasing my know-ledge of the law in each of the jurisdictions of the...
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The Ethics and Governance of Human Genetic Databases European Perspectives Part 6 ppsx
... survival and rightsprotection.’ 25 The themes of resourcing, commonality, difference and (dis)benefitare further expressed in the continuing statement:After the rest of the world have squandered their ... there aredifferent understandings of ethics and the appropriate role and resourcing of research, and indeed of the concept of global public goods itself.Our argument proceeds by outlining the ... manner.20 The UNESCO Universal Declaration on the Human Genome and Human Rights has recognized the fundamentalunity of humankind manifested in our sharing of the genome and sug-gested the linkage of...
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The Ethics and Governance of Human Genetic Databases European Perspectives Part 7 pps
... private,whether it is the best use of money), governance of the project, aims of the project, scientific value of the project (reliability of the data) and the perception of the public.194 Margit Sutropnot ... Icelandersare for instance listed in the Book of Icelanders, which is a databasecontaining the genealogical information of 95% of the Icelandic popula-tion since the settlement of Iceland ... anyoneat the time of consent: the time of the storage of samples and data has notbeen limited; it is not possible to foresee all the uses of the samples and associated data nor to specify who the...
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The Ethics and Governance of Human Genetic Databases European Perspectives Part 8 ppt
... not only the Human Genome Project, but also population-based human genetic databases. One of the main justifications for human genetic databases isindeed the possibility of producing the knowledge ... purposes. Participants would be informed that they and/ ortheir proxies will be regularly informed about the research practice and that they can at any time opt out of the research if they choose.There ... at a theoretical level – and whether the latter iseven possible.4. the ways in which the development of and operation of biobanks giverise to questions about the existing repertoire of ethical...
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The Ethics and Governance of Human Genetic Databases European Perspectives Part 10 pdf
... towards genetic research 54 55 Health Sector Database (HSD) 53 , 57 , 251 method of study 54 personal information rights 57 privacy rights 56 57 trust 55 , 58 methodology of study 54 , 59 –60, 255 – 256 regulation ... attitudes and awareness 20, 45 46Estonia 46, 47–49, 51 , 250 Estonian Genome Project 49 52 trust 50 , 51 , 52 , 1 95, 196, 252 Iceland 45, 57 58 , 250 access to information 55 , 57 consent 56 , 58 280 ... databases 194–1 95 Estonia 50 , 51 , 52 , 1 95, 196, 252 Iceland 55 , 58 , 189, 1 95, 196, 252 kind of trust needed 1 95 198as main concern 250 – 251 Sweden 62, 63, 64United Kingdom 67, 69, 70–71, 1 95, 196, 252 Tsui,...
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Từ khóa: guidelines for the use of molecular tests for the detection and genotyping of human papilloma virus from clinical specimensprotocol for the detection and genotyping of human papillomaviruses using a liquid bead microarray assaythe evolution and endocrinology of human behavior a focus on sex differences and reproductionthe isolation and culture of human cord blood derived mesenchymal stem cells under low oxygen conditionsgarcinol plumbagin and mangiferin in the prevention and therapy of human malignancies mechanisms of anticancer activitythe amount and structure of human movement variabilitya critique of the ethics and emotion of careanalysis of the real sittuation of the training and development of human resource in evnhcmcanalysis of the real situation of the training and development of human resource in evnhcmcthe administration and governance of mae sotthe political economy and culture of human rights in east asiathe economics and psychology of inequality and human developmentthe economics and psychology of personality traits journal of human resourcesthe economics and psychology of inequality and human development heckmanthe european commission s report on the development and implications of patent law in the field of biotechnology and genetic engineeringBáo cáo thực tập tại nhà thuốc tại Thành phố Hồ Chí Minh năm 2018Báo cáo quy trình mua hàng CT CP Công Nghệ NPVNghiên cứu sự hình thành lớp bảo vệ và khả năng chống ăn mòn của thép bền thời tiết trong điều kiện khí hậu nhiệt đới việt namNghiên cứu tổ hợp chất chỉ điểm sinh học vWF, VCAM 1, MCP 1, d dimer trong chẩn đoán và tiên lượng nhồi máu não cấpNghiên cứu tổ chức chạy tàu hàng cố định theo thời gian trên đường sắt việt namđề thi thử THPTQG 2019 toán THPT chuyên thái bình lần 2 có lời giảiGiáo án Sinh học 11 bài 13: Thực hành phát hiện diệp lục và carôtenôitGiáo án Sinh học 11 bài 13: Thực hành phát hiện diệp lục và carôtenôitGiáo án Sinh học 11 bài 13: Thực hành phát hiện diệp lục và carôtenôitNGHIÊN CỨU CÔNG NGHỆ KẾT NỐI VÔ TUYẾN CỰ LY XA, CÔNG SUẤT THẤP LPWAN SLIDETrả hồ sơ điều tra bổ sung đối với các tội xâm phạm sở hữu có tính chất chiếm đoạt theo pháp luật Tố tụng hình sự Việt Nam từ thực tiễn thành phố Hồ Chí Minh (Luận văn thạc sĩ)Định tội danh từ thực tiễn huyện Cần Giuộc, tỉnh Long An (Luận văn thạc sĩ)Thiết kế và chế tạo mô hình biến tần (inverter) cho máy điều hòa không khíKiểm sát việc giải quyết tố giác, tin báo về tội phạm và kiến nghị khởi tố theo pháp luật tố tụng hình sự Việt Nam từ thực tiễn tỉnh Bình Định (Luận văn thạc sĩ)BT Tieng anh 6 UNIT 2Giáo án Sinh học 11 bài 14: Thực hành phát hiện hô hấp ở thực vậtGiáo án Sinh học 11 bài 14: Thực hành phát hiện hô hấp ở thực vậtBÀI HOÀN CHỈNH TỔNG QUAN VỀ MẠNG XÃ HỘIMÔN TRUYỀN THÔNG MARKETING TÍCH HỢPQUẢN LÝ VÀ TÁI CHẾ NHỰA Ở HOA KỲ