... 228– 233 genetic counselling 1 23 125, 130 genetic disorders 186, 233 benefit-sharing and 167duty of care 1 23 familial interests in genetic databases and 111 genetic counselling 1 23 125, 130 testing ... powers and sanctions 139 ethical review 138 forms of 133 notification and licensing 136 , 137 supervisory bodies 135 , 144ethical considerations and 219, 221–222ethical review 137 – 138 forms of 133 – 134 genetic ... approach 1 53 regulation (governance) 95, 132 , 2 53 enforcement powers and sanctions 139 ethical review 137 – 138 forms of 134 notification and licensing 136 , 137 supervisory bodies 135 , 136 , 144right...